Rare Disease

1 in 20 live with a rare disease

… a population which is often overlooked. For a disease to be considered rare it will affect fewer than 200,000 in the US and fewer than 2,000 in Europe. Large populations of people, but when you then consider there are over 7000 diagnosed rare diseases why are we still having […]

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Adventures With Friedreich’s Ataxia Research Alliance

Friedreich’s Ataxia is a rare genetic disease which causes movement problems as a result of damage to the nervous system. It affects nerve fibres in the spinal cord which results in interference with information from the brain being carried to the body. The condition progressively worsens over time and this […]

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